John O’Brien
This document Numbers and Faces: The Ethics of Person Centered Planning dives deep into the ethics and challenges of person-centered planning, a process designed to empower individuals with developmental disabilities to live meaningful, self-determined lives. It explores the tension between the values services claim to uphold—like inclusion and individualization—and their actual capacity to deliver on those promises. Through real-life stories, such as Hal’s journey from institutional living to a personalized community home, the text highlights how listening to people’s desires can spark transformative change.
The heart of person-centered planning lies in disciplined imagination, creative problem-solving, and building strong relationships. Practitioners are encouraged to align with individuals and their allies, generate actionable plans, and advocate for necessary resources—all while navigating systemic barriers. The document emphasizes the importance of resisting low expectations and fostering inclusive communities where people with disabilities can thrive.
It also addresses the ethical dilemmas practitioners face, such as deciding whether a challenge is “big enough” to act on or disengaging from responsibility. The text calls for service organizations to embrace change, improve their capacity for individualized support, and learn from the process. Numbers and data play a role, but the real magic lies in the stories and relationships that drive meaningful action.
Ultimately, this is a call to action for practitioners, families, and allies to imagine better futures, challenge systemic limitations, and create spaces where people’s stories are heard and valued. If you’re passionate about inclusion, self-determination, and making a difference, this document offers inspiration, practical insights, and a reminder that change starts with listening and acting on what truly matters.