Helping People to Speak for Themselves

This document is a detailed report from a 1990 workshop at the AAMR Conference in Atlanta, Georgia, focused on empowering self-advocacy groups for people with developmental disabilities. ​ Sponsored by the Research & Training Center on Community Living, it explores strategies to help individuals speak for themselves, advocate for systemic change, and strengthen self-advocacy efforts. Participants, including people with disabilities, staff, and volunteers, shared insights on overcoming barriers like labeling, poverty, and restrictive environments. Key themes include person-to-person support, empowerment through connections, information, and financial control, and the importance of fostering leadership within local chapters. ​

The report emphasizes the need for community involvement, political activism, and coalition-building to create lasting change. ​ It also highlights challenges, such as tokenism in disability service organizations and the risk of burnout among advocates. ​ Practical advice is offered on navigating Individual Program Plans (IPPs), influencing media narratives, and participating in councils and boards effectively. ​

Looking ahead, the document calls for a national self-advocacy resource to support groups, share information, and strengthen networks. ​ It stresses the importance of self-advocacy groups controlling this resource to ensure it aligns with their goals. ​ Readers will find actionable insights on empowering individuals, fostering inclusive communities, and driving systemic change for people with disabilities. ​