Down Stairs that are Never Your Own

This insightful document explores the challenges and opportunities in supporting adults with developmental disabilities to live in their own homes, rather than in institutional or facility-based settings. ​ Drawing inspiration from Dante’s poetic imagery, it highlights the struggles faced by individuals who often live under restrictive systems that limit their independence and sense of belonging. ​ The current standard in residential services is critiqued for its limitations, including lack of personal control, social isolation, and the inability to foster true community membership. ​

The paper introduces a transformative “new standard” that emphasizes empowering individuals with severe disabilities to establish homes of their own. ​ It outlines three key dimensions of home: sense of place, control, and security of place. ​ These dimensions are essential for creating a life of dignity, independence, and meaningful relationships. ​ The document also addresses systemic barriers, such as restrictive policies, inaccessible housing, and insufficient funding, while proposing actionable solutions like separating support services from facilities, advocating for policy changes, and fostering community-based housing initiatives.

Through real-life stories and thoughtful analysis, the paper challenges traditional assumptions and calls for a renewed relationship between service providers and individuals with disabilities—one rooted in respect, empowerment, and shared humanity. ​ It’s a must-read for advocates, policymakers, and anyone passionate about creating inclusive communities where everyone can thrive.