Self-Directed Support- Re-Framing Inter-agency Partnership Working

This document, Self-Directed Support: Re-Framing Inter-agency Partnership Working by John O’Brien and Simon Duffy, explores a transformative approach to social care, focusing on empowering citizens with significant impairments to achieve independent living. Instead of prioritizing system-level integration between agencies, the authors advocate for personalized integration, where individuals actively shape their own support systems. ​ Drawing inspiration from the Independent Living movement, the paper highlights the importance of self-directed support, which gives citizens control over resources, enabling them to live meaningful lives. ​

The document dives into the roots of self-directed support, tracing its origins to the activism of Ed Roberts and the Center for Independent Living, and showcases international examples of individualized funding programs. It outlines key elements like individual budgets, discretion in spending, and access to planning assistance, illustrated through real-life stories like Mrs. W and Andre, who successfully manage their support systems. ​

The authors challenge traditional paternalistic models of care, emphasizing the need for a mindset shift that respects the rights and responsibilities of citizenship. ​ They propose a new system architecture based on flexibility, accountability, and community engagement, likening it to the efficiency of IBM’s Blue Gene computer design. ​

Ultimately, the paper calls for bold action to reframe inter-agency partnerships, focusing on collaboration with citizens rather than between agencies. ​ It introduces principles like the right to independent living, personalized budgets, and self-determination, offering a roadmap for transforming social care systems into empowering, citizen-centered frameworks. ​ This is a must-read for anyone passionate about disability rights, social care reform, and creating inclusive communities. ​