This insightful document by Audrey D. Cole explores the principle of “First, do no harm” in the context of disability rights and decision-making. Drawing inspiration from Ira Glasser’s cautionary principle in Doing Good: The Limits of Benevolence, Cole emphasizes evaluating programs for their potential harm rather than solely their benefits. She critiques historical practices like guardianship and institutionalization, highlighting their unintended harm to individuals with intellectual disabilities. Instead, she advocates for Supported Decision Making, a process that preserves legal capacity and promotes inclusion.
Cole also examines the Registered Disability Savings Plan (RDSP), pointing out its discriminatory design that excludes individuals with severe intellectual disabilities from being Plan Holders due to legal capacity requirements. While recent amendments allow parents or spouses to act as Holders, she warns this is a temporary fix that perpetuates inequality. Using her son’s experience as an example, Cole calls for systemic change to ensure equal access to RDSPs without compromising autonomy.
The document concludes with a call to action, urging governments to align with Article 12 of the UN Convention on the Rights of Persons with Disabilities, which guarantees decision-making support and equality. With a blend of historical reflection and forward-thinking solutions, Cole challenges readers to rethink benevolence and advocate for inclusive, harm-free policies that empower individuals with disabilities.