Noticing We’re Upside Down – O’Brien

This document dives into the art of person-centered planning for individuals with intellectual and developmental disabilities (ID/DD), offering a fresh perspective on designing supports that truly fit their unique lives. ​ It introduces seven “How might we…?” ​ lenses—creative questions that spark imagination and help uncover opportunities for inclusion, autonomy, and valued roles in the community. ​ By focusing on strengths, relationships, and resilience, the approach shifts from fitting people into programs to co-creating supports that honor their individuality. ​

The author also tackles the “upside-down lenses”—harmful societal misperceptions that distort how people with ID/DD are seen, such as the “eternal child” stereotype or the idea that disability equals suffering. ​ These outdated views often lead to exclusion and limit the ability to envision a fulfilling life for individuals with ID/DD. ​ The document calls for mindful resistance to these biases and encourages readers to challenge systems that prioritize programs over people.

With a mix of historical context, practical strategies, and inspiring examples, this resource highlights the importance of collaboration, advocacy, and creativity in building inclusive communities. It emphasizes the need for trusted, personalized supports and the power of seeing people with ID/DD as contributors to society, not burdens. ​

Whether you’re a family member, advocate, or professional, this document is a thoughtful guide to reimagining supports and creating a world where everyone can thrive. ​ It’s a call to action for embracing possibility and building a more just, inclusive future. ​