Navigating the Crooked Map Zone: A Guide to Improving Services for People with Disabilities

This insightful document explores the challenges and opportunities in improving services for people with developmental disabilities. ​ Using the metaphor of a “crooked map,” it highlights how outdated mental models and rigid service structures can lead organizations astray, despite their good intentions. ​ The authors emphasize the importance of creating accurate, flexible maps that reflect the evolving needs and aspirations of individuals with disabilities, their families, and communities. ​

Through engaging reflections and practical examples, the paper examines the history of day services and quality improvement efforts in the U.S., showcasing the shift from segregated, standardized services to more inclusive, person-centered approaches like supported employment and living. ​ It underscores the need for service providers to embrace change, listen to the voices of those they serve, and invest in innovative ways of working—even when it feels risky or uncomfortable. ​

The document also delves into the emotional challenges of navigating change, the importance of organizational design, and the role of quality improvement principles in creating meaningful, community-centered opportunities. ​ It calls for collaboration among stakeholders to redesign systems that truly support independence, productivity, and inclusion. ​

Whether you’re a service provider, advocate, or community member, this paper offers valuable insights and practical guidance for making a positive impact in the lives of people with disabilities. ​ Dive in to explore how we can collectively chart a better course through the crooked map zone! ​