Supporting People with Developmental Disabilities in Dane County

Supporting a Journey from Chaos to Contribution

This document, crafted by John O’Brien in 2016, offers an insightful look into the transformative journey of E, a person with developmental disabilities, from chaos to meaningful community contribution. ​ It highlights the innovative support systems designed to help E overcome emotional dysregulation, self-harm, and destructive behaviors, enabling him to thrive in work, volunteer roles, and social activities. ​ Using a Systems Thinking framework, the document explores four key aspects of assistance: Practices, Structures, Stories, and Sources.

Readers will discover how E’s individualized support team, including family, consultants, and community organizations like Options in Community Living and Community TIES, collaborated to redesign his care. ​ This redesign emphasized trauma-informed practices, sensory integration, and self-regulation strategies, moving away from coercive interventions and psychiatric medications. ​ E’s progress is remarkable: reduced staff supervision, no hospitalizations or police involvement since 2012, and active participation in community life. ​

The narrative also celebrates E’s resilience, his ability to inspire deep commitment from his supporters, and the power of respectful, collaborative relationships. ​ It underscores the importance of understanding neurophysiological differences and trauma in shaping effective support systems. ​ Ultimately, this document is a testament to the belief that everyone, regardless of challenges, can live a fulfilling life in their community with the right support. ​ Readers will gain valuable insights into creating inclusive, person-centered assistance that fosters growth, trust, and contribution. ​