Known by the Stories we Tell

The document reflects on the Durham Association for Family Respite Services (DFRS) and its role in supporting families of individuals with developmental disabilities amidst systemic changes. ​ It highlights three key challenges: uncertainties in funding and eligibility processes, the Ministry’s rigid service definitions threatening DFRS’s flexible approach, and the undervaluation of DFRS’s deep understanding of […]

A Story of Deep Delight

Tell Me a Story of Deep Delight by John O’Brien, explores the transformative work of families in the Durham Region who are reshaping the narrative around developmental disabilities. ​ It highlights how these families, supported by a network of relationships, have moved beyond societal barriers and outdated storylines of tragedy to create lives filled with […]

Parent Resignation

This document dives into the challenges parents face when navigating the “state of resignation”—a mindset shaped by societal devaluation of people with disabilities and underdeveloped support systems. ​ It explores how resignation can limit parents’ vision for their children’s future, fostering low expectations and feelings of isolation. ​ However, it emphasizes that positive action is […]

Family Leadership

is document dives deep into the heart of leadership, exploring how personal struggles and shared experiences fuel meaningful change. ​ It emphasizes the importance of relationships, storytelling, and connecting with diverse families, particularly those impacted by disability. ​ Readers will discover practical strategies for building networks, fostering inclusion, and navigating challenges like rejection, neglect, and […]

Support for Parent Leadership

Learning About Community Support for the Families of Children with Disabilities, offers a deep dive into the challenges and lessons learned from the Parent Leadership Program’s (PLP) Local Liaison Learning Group initiative. Conducted between 1998 and 1999, the project aimed to foster parent-professional partnerships and increase natural community support for families of children with disabilities. […]

Visions of Family Support

Visions of Family Support: A Guide to Empowering Families in Georgia ​ This insightful document captures the voices of 50 parents who shared their experiences and ideas at the 2001 Statewide Conference on Family Support in Jekyll Island, Georgia. ​ It explores the challenges families face when navigating support systems for loved ones with disabilities […]

Thinking About Family Support

Thinking about Family Support This document, “Thinking About Home and Family Support: A Guide to the Literature,” is a thoughtful exploration of how families, communities, and professionals can better support individuals with disabilities. ​ Prepared by John O’Brien for the Governor’s Council for the Handicapped and Gifted in Alaska, it offers a rich collection of […]

Holding Our Dreams

Holding Our Dreams: Supporting Families in Durham Region ​ This document is a thoughtful guide for families in Durham Region who want to create stronger support systems for individuals with disabilities. ​ It highlights the importance of relationships, such as support circles and family groups, in helping families move from isolation to connection. ​ These […]

Family Grants

This document dives into Clark County’s Family Grants Program, a groundbreaking initiative designed to empower families of young adults with developmental disabilities to shape their career paths. ​ Launched in 1996, the program offers up to $4,500 in funding, personalized employment planning, and hands-on support to help participants transition from school to meaningful, paid community […]

Facilitating Circles

“Reflections on Circles,” captures insights from a retreat held in 2003 for circle facilitators, families, and circle members. ​ It explores the transformative power of intentional relationships, emphasizing the importance of deep listening, mutuality, and shared humanity. ​ Circles are described as intentional spaces where people come together to build friendships, exchange gifts, and support […]